Jonathan Pitre, known as the ‘Butterfly Boy’ because of the skin condition he suffered from, has died at the age of 17.
Pitre, who is from the Ottawa area, lived with a rare disease known as epidermolysis bullosa, a painful genetic disorder that caused his skin to easily tear and blister.
A longtime Ottawa Senators fan, he was made an honorary scout by the club in 2014. The team will wear special stickers on their helmets in Pitre’s honour during their game against the Pittsburgh Penguins on Friday.
Pitre died Wednesday evening at a hospital in Minnesota, where he was receiving an experimental stem cell transfusion.
Many from the sporting and hockey world shared their condolences on Twitter Friday morning, when news of his death spread.