Senators fan Jonathan Pitre, known as ‘Butterfly Boy,’ dies at 17

Jonathan Pitre is a boy that suffers from the extremely rare Epidermolysis Bullosa, but faces every day with a positive heart and a love of hockey, inspiring the Ottawa Senators and the whole NHL community.

Jonathan Pitre, known as the ‘Butterfly Boy’ because of the skin condition he suffered from, has died at the age of 17.

Pitre, who is from the Ottawa area, lived with a rare disease known as epidermolysis bullosa, a painful genetic disorder that caused his skin to easily tear and blister.

A longtime Ottawa Senators fan, he was made an honorary scout by the club in 2014. The team will wear special stickers on their helmets in Pitre’s honour during their game against the Pittsburgh Penguins on Friday.

Ottawa Senators on Twitter

Pitre died Wednesday evening at a hospital in Minnesota, where he was receiving an experimental stem cell transfusion.

Many from the sporting and hockey world shared their condolences on Twitter Friday morning, when news of his death spread.

When submitting content, please abide by our submission guidelines, and avoid posting profanity, personal attacks or harassment. Should you violate our submissions guidelines, we reserve the right to remove your comments and block your account. Sportsnet reserves the right to close a story’s comment section at any time.